NNNGO Newsletter on Understanding the Companies and Allied Matters Act – March, 2019

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An annual return refers to profit made on investment, over a period of time. In Nigeria, corporate entities registered with the Corporate Affairs Commission under the Companies and Allied Matters Act (CAMA) are mandated to file annual returns with the Commission (CAC) on a yearly basis.

 

Even though nonprofit organisations do not make profit on investments, Section 55 of CITA specifically makes it clear that ALL companies, registered with the CAC are to file returns irrespective of tax exemptions conferred on their income,in order to encourage transparency.

 

Generally,organisations must file annual returns not earlier than 30th June or later than 31st December every year (except the year the organisation was incorporated). However, newly registered organisations begin filing their first annual returns, not later than 18 months after incorporation while older organisations file their annual returns not later than 42 days after their Annual General Meeting.

 

To file annual returns with the Corporate Affairs Commission, an organisation is expected to visit the CAC website, download and fill out an Incorporated Trustees Annual Returns form (CAC/ IT 4), attach an audited financial statement signed by a chartered accountant and two trustees of the organisation or a statement of affairs, in cases where the organisation is yet to commence operation along with a fee of #5,000.

 

Complying with this law will aid the maintenance of good organisational structures as it encourages a culture of record keeping and puts compliant organisations on good standing with the commission- accurate and updated records of said organisations will be accessible to the commission which gives room for transparency and accountability. 

 

Failure to file annual returns within the stipulated period will incur an additional cost of #5,000 for every year of noncompliance as penalty. Persistent noncompliance to this law could result in eventual de-registration of errant nonprofits as the commission is left to assume that this organisation is non-operational. 

 

Filing annual returns with the Corporate Affairs Commission as and when due helps to keep the company’s name on the commission’s register, saves time in situations where a nonprofit needs a post incorporation service or documents from the commission and also prevent nonprofits from payment of penalties that apply for late filing of annual returns. 

 

This newsletter is supported by the Commonwealth Foundation. However, the ideas and opinions presented in this document do not necessarily represent those of Commonwealth Foundation, NNNGO or any other organisations mentioned. 

Human Rights and Social Justice in Nigeria (March, 2019)

Fundamental human rights are the “inalienable rights of people”. These are legal entitlements enjoyed by every citizen of a country without fear of violation from government or fellow citizens. In every country, these rights are protected and enshrined in the National constitution- chapter 4 of the 1999 constitution of Nigeria states what are considered as the rights of every Nigerian citizen and how they can be protected.

 

However, shreds of evidence show that despite the entrenchment of human rights in the Nigerian constitution, continuous restrictions on some aspects of citizens’ rights continue to undermine the status of human rights in the country. Over time, the civic space has been threatened. There have been cases of human right violations, ranging from the intimidation and harassment of human right defenders, restrictions on the freedom of expression, assembly and association, among others.

 

The Sustainable Development Goals address the importance of protecting citizens’ rights. Goal 16 of the SDGs delineates the need to  provide access to justice for all and build effective, accountable and inclusive institutions at all levels and the civil society must, in line with    the Istanbul principle of development effectiveness, which emphasizes the need for “respect and promotion of human rights and social   justice; carry out the responsibility of bringing accountability by exposing and following up on human right violations.

 

Accordingly, CSOs are effective as development actors when they develop and implement strategies, activities and practices that promote individual and collective human rights, including the right to development with dignity, right to decent work, social justice and equity for all people.

 

CSOs should be at the forefront towards ensuring the protection of these rights and the strengthening of civic space in Nigeria. Although   some measures have been put in place by the government to improve the human rights situations in Nigeria, there is still room for improvement.

 

This newsletter is supported by Forus. However, the ideas and opinions presented in this document do not necessarily represent those of Forus, NNNGO or any other organisation mentioned.

NNNGO Newsletter on Understanding the Companies and Allied Matters Act – March, 2019

An annual return refers to profit made on investment, over a period of time. In Nigeria, corporate entities registered with the Corporate Affairs Commission under the Companies and Allied Matters Act (CAMA) are mandated to file annual returns with the Commission (CAC) on a yearly basis.

 

Even though nonprofit organisations do not make profit on investments, Section 55 of CITA specifically makes it clear that ALL companies, registered with the CAC are to file returns irrespective of tax exemptions conferred on their income,in order to encourage transparency.

 

Generally,organisations must file annual returns not earlier than 30th June or later than 31st December every year (except the year the organisation was incorporated). However, newly registered organisations begin filing their first annual returns, not later than 18 months after incorporation while older organisations file their annual returns not later than 42 days after their Annual General Meeting.

 

To file annual returns with the Corporate Affairs Commission, an organisation is expected to visit the CAC website, download and fill out an Incorporated Trustees Annual Returns form (CAC/ IT 4), attach an audited financial statement signed by a chartered accountant and two trustees of the organisation or a statement of affairs, in cases where the organisation is yet to commence operation along with a fee of #5,000.

 

Complying with this law will aid the maintenance of good organisational structures as it encourages a culture of record keeping and puts compliant organisations on good standing with the commission- accurate and updated records of said organisations will be accessible to the commission which gives room for transparency and accountability.

 

Failure to file annual returns within the stipulated period will incur an additional cost of #5,000 for every year of noncompliance as penalty. Persistent noncompliance to this law could result in eventual de-registration of errant nonprofits as the commission is left to assume that this organisation is non-operational.

 

Filing annual returns with the Corporate Affairs Commission as and when due helps to keep the company’s name on the commission’s register, saves time in situations where a nonprofit needs a post incorporation service or documents from the commission and also prevent nonprofits from payment of penalties that apply for late filing of annual returns.

This newsletter is supported by the Commonwealth Foundation. However, the ideas and opinions presented in this document do not necessarily represent those of Commonwealth Foundation, NNNGO or any other organisations mentioned. 

Filing of Annual Returns (March, 2019)

An annual return refers to profit made on investment, over a period of time. In Nigeria, corporate entities registered with the Corporate Affairs Commission (CAC) under the Companies and Allied Matters Act (CAMA) are mandated to file annual returns with the Commission, on a yearly basis.

 

Even though nonprofit organisations do not make profit on investments, Section 55 of CITA specifically makes it clear that ALL companies, registered with the CAC must file returns irrespective of tax exemptions conferred on their income. This helps to encourage transparency, accountability and to keep record of all functioning organisations, operating within the country.

 

Generally, organisations must file annual returns not earlier than 30th June or later than 31st December every year (except the year the organisation was incorporated). However, newly registered organisations begin filing their first annual returns, not later than 18 months after incorporation while older organisations file their annual returns not later than 42 days after their Annual General Meeting.

 

To file annual returns with the Corporate Affairs Commission, an organisation is expected to visit the CAC website, download and fill out an Incorporated Trustees Annual Returns form (CAC/ IT 4), attach an audited financial statement signed by a chartered accountant and two trustees of the organisation or a statement of affairs, in cases where the organisation is yet to commence operation along with a fee of  #5,000.

 

Complying with this law will aid the maintenance of good organisational structures as it encourages a culture of record keeping and puts compliant organisations on good standing with the Commission accurate and updated records of said organisations will be accessible to the commission which gives room for transparency and accountability.

 

Failure to file annual returns within the stipulated period will incur an additional cost of #5,000 for every year of noncompliance, as penalty. Persistent noncompliance to this law could result in eventual de-registration of errant nonprofits as the commission is left to assume that this organisation is non-operational.

 

Filing annual returns with the Corporate Affairs Commission as and when due helps to keep the organisation’s name on the commission’s register, saves time in situations where a nonprofit needs a post-incorporation service or documents from the commission and also prevents nonprofits from payment of penalties that apply for late filing of annual returns.

 

This publication has been produced with the support of Commonwealth Foundation and the Nigeria Network of NGOs (NNNGO). However, the contents of this publication do not necessarily reflect the views and opinions of Commonwealth Foundation or NNNGO.

 Jaldhaara Foundation on World Water Day

At Jaldhaara Foundation, it is everything freshwater. Jaldhaara Foundation’s slogan ‘Quenching A Bigger Thirst Nigeria’ speaks volume on the essential need of water for all Nigerians.

 

With the foundation’s 5-point Agenda, JF aims to make available fresh water for left-behind communities in Nigeria.

 

Incorporated to remediate the problems in the areas of Safe Water, Sanitation and Hygiene (WASH), JF has been able to streamline the percentage of those who are short of fresh water while vigorously working on a quick and effective impact as regards clean water.

 

By 2020, Jaldhaara Foundation plans to drive the WASH objectives in a large number of communities by implementing sustainable WASH solutions in over two thousand (2,000) communities and by building preference for safe water, sanitation and hygienic practices in unaddressed, isolated and marginalized communities.

 

By virtue of expansion and in the bid to make fresh water accessible to all, Jaldhaara Foundation together with an established strong partnership with Water Health Nigeria and other related organizations intend to have a structured phase approach which is meant to address the life cycle of water management (i.e. water provision, purification and waste water management) to the marginalized communities, which include: communities and habitations that are underserved and face significant water contamination.

 

*Jaldhaara Foundation will provide safe drinking water access to these communities through the conventional model i.e. a WHC.

 

*About 140 communities will definitely have safe water access.

The intention also extends to installation of 140 WHCs across various communities in Nigeria which would mean that more than 4 million people will have safe water access which would automatically result in the reduction of waterborne disease with an increase in annual savings in households due to reduction in medical expenses.

World Tuberculosis Day with Abraham’s Children Foundation

On World Tuberculosis (TB) day, Olaife Ilori speaks with Victor Dorawa Koreyo, Executive Director, Abraham’s Children Foundation. Here is what he has to say about TB, its causes, symptoms and available treatment:

 

*What is TB?

Tuberculosis (also known as “TB”) is a disease caused by a type of bacteria called Mycobacterium tuberculosis.

 

*What is the difference between TB infection and TB disease?

Tuberculosis (TB) is a disease caused by a germ called Mycobacterium tuberculosis that is spread from person to person through the air. TB usually affects the lungs, but it can also affect other parts of the body, such as the brain, kidneys and the spine. It is very important to note that the TB infection is different from the TB disease.

 

Persons with TB infection do not feel sick and do not have any symptoms. They are infected with M. tuberculosis, but do not have TB disease. The only sign of TB infection is a positive reaction to the tuberculin skin test or TB blood test. So while persons with TB infection are not infectious and cannot spread TB infection to others, the TB disease is infectious and can be spread from one person to another.

 

*Is TB disease dangerous?

Tuberculosis Disease has been plaguing humankind for thousands of years; it has been and still one of the deadliest infectious diseases in the world.

*How common is the TB disease?

About one-quarter of the world’s population has latent TB, which means people have been infected by TB bacteria. People infected with TB bacteria have a 5–15% lifetime risk of falling ill with TB.

 

*What is “smear-negative” TB?

Although patients with sputum smear–negative, can transmit infection, indeed, but they have been presumed to be far less infectious than patients who are sputum smear–positive. However, quantitative data are limited regarding the proportion of TB transmission that is attributable to patients with smear-negative.

 

 

*What is a TB contact?

Tuberculosis (TB) contact means having close contact with patients with infectious TB. As they are at high risk of infecting non-patients (and in line with the End TB strategy), TB contacts should be investigated systematically and actively for TB infection and disease so it does not spread.

 

*What is TB exposure?

You may have been exposed to TB bacteria if you have spent time with someone with TB disease. The TB bacteria goes into the air when a person with active TB disease of the lungs or throat coughs, sneezes, speaks, or sings.

*What are the symptoms of TB?

  • Coughing that lasts three or more weeks.
  • Coughing up blood.
  • Weight loss.
  • Fatigue.
  • Fever.

*How does TB spread?

TB is spread through the air from one person to another. The bacteria are put into the air when a person with TB disease of the lungs or throat coughs, sneezes, speaks, or sings. People nearby may breathe in these bacteria and become infected. However, not everyone infected with TB bacteria becomes sick.

 

*Do You Think TB Patients Need to Be Put in Isolation?

Persons who have or are suspected of having TB disease should be placed in an area away from other patients without the disease, preferably in an airborne infection isolation room.

*What is the incubation period of TB disease?

The incubation period of TB disease may vary, but it is usually from 2 to 12 weeks.

*What tests determine whether a person has Tb? are those tests safe for pregnant women?

 

A positive TB skin test or TB blood test tells that a person has been infected with TB bacteria. It does not tell whether the person has latent TB infection (LTBI) or has progressed to TB disease. Other tests, such as a chest x-ray and a sample of sputum, are needed to see whether the person has TB disease.

 

TB skin testing is considered both valid and safe throughout pregnancy. TB blood tests also are safe to use during pregnancy, but have not been evaluated for diagnosing TB infection in pregnant women.

 

*How best should TB Disease be treated?

Treating TB takes longer than treating other types of bacterial diseases. However, for active tuberculosis, the treatment usually consists of a combination of TB drugs that must be taken for at least 6 months. But the treatment will only be successful if the drugs are taken exactly as required for the entire length of time.

 

*What is DOT and why use DOT?

Directly Observed Treatment(DOT) is the name given to the tuberculosis (TB) control strategy recommended by the World Health Organization. According to WHO, “The most cost-effective way to stop the spread of TB in communities with a high incidence is by curing it through Directly Observed Treatment.

 

*According to World Health Organization (WHO), between 2000-2014, approximately 43 million lives were saved through diagnosis and treatment. In what way is your organization helping to ensure this disease is kept under wrap?

 

A massive challenge glares us all in Nigeria especially with the high rate of this disease. That I am wearied beholding the burden even in a community like (Afikpo North Local Government Area of Ebonyi State) is an understatement. As an NGO, we want to redefine the Nigerian health care through speedy treatment of malaria, HIV/AIDS and especially TB. Results of our impactful services in partnership with Afikpo North in the area of TB control is quite encouraging already and i am sure with this step in the right direction, TB Disease will be eradicated by 2030 hopefully.

 DOWN Today; UP Tomorrow – Knowing Down Syndrome

It is quite distressing, harrowing and mortifying for a child’s right to an amazing life to be decided upon even before their presence on earth. Down Syndrome is a stigma, segregation and a limited life opportunity in most parts of the world and it is rather unfortunate that this is the lime life has given to people living with this disorder.

 

Down Syndrome is named after the English Doctor, John Langdon Down, who was the first to categorize the common features of people with the condition. It is the most frequently occurring chromosomal disorder and the leading cause of intellectual and developmental delay in Nigeria and in the world. Today the average lifespan of a person with Down Syndrome is approximately 60 years.

 

This chromosomal disorder is caused when an error in cell division results in an extra 21 chromosomes. Through a series of screenings and tests, Down Syndrome can be detected even before or after birth, which is 1 in every 700 pregnancies. Determined by many factors, research suggests there is a higher risk if the mother delivers at over 35 years of age. Research also reveals that before the age of 30 years, fewer than one in 1,000 pregnancies will be affected by Down syndrome. After the age of 40 years, this figure rises to about 12 in 1,000.

 

Hence to ascertain the possibility of giving birth to babies with Down syndrome, during the pre- natal period, two types of procedures are available to pregnant women: screening tests and diagnostic tests. The screening tests estimate the risk of the baby having Down Syndrome while the Diagnostic tests tell whether or not the baby actually has the syndrome.

 

The estimated incidence of Down Syndrome is between 1 in 1,000 to 1 in 1,100 live births worldwide. According to UN, DS causes intellectual disability and associated medical issues.

Sierra Leone, a country in West Africa records the highest mortality rate from DS with 3.8 per 100,000 people in 2013.

 

In Nigeria local communities believe that all defects or early deaths which may occur in children with DS is traceable to parental misdeeds or links between the child and the evil world. While the myth is most untrue, studies of Down Syndrome covering a period of 9 years have revealed an incidence of 1 in 865 live-births in Nigeria.

 

FACTS ABOUT DOWN SYNDROME

  • Older women are more likely to give birth to a child with Down syndrome.
  • Where there should be two copies of every chromosome. In Down syndrome, there are three copies, either complete or partial, of chromosome 21.
  • The characteristics of Down syndrome include low muscle tone, short stature and a protruding tongue.
  • Individuals with Down syndrome have a higher risk of some diseases including epilepsy
  • Screening tests can be used during pregnancy to estimate the probability that a child will have Down syndrome.

TYPES

The most common form of Down syndrome is known as trisomy 21, a condition where individuals have 47 chromosomes in each cell rather than 46.

 

*Trisomy 21 is caused by an error in cell division called nondisjunction. This leaves a sperm or egg cell with an extra copy of chromosome 21 before or at conception. This variant accounts for 95 percent of Down syndrome cases.

 

*Mosaic Down syndrome is when some cells in the body are normal while others have Trisomy 21.

*Translocation Down Syndrome is caused by rearranged chromosome material. There are three 21 chromosomes just like there are in trisomy 21, but one of the 21 chromosomes is attached to another chromosome, rather than being separate.

 

CAUSES

Every cell in the body contains genes that are grouped along chromosomes in the cell’s nucleus. There are normally 46 chromosomes in each cell, 23 inherited from the mother and 23 from the father.

 

When some or all of a person’s cells have an extra full, or partial, copy of chromosome 21, the result is Down syndrome.

 

FEATURES OF DOWN SYNDROME

Children with DS do look a little bit different to other children. Children with Down syndrome often reach developmental milestones later than their peers. On average, a child with Down syndrome will sit at 11 months, crawl at 17 months, walk at 26 months. They tend to have:

  • Large protruding tongue
  • Almond-shaped eyes with skin that covers the inner eye
  • Small ears
  • A small head that is somewhat flat at the back
  • Short neck
  • A single crease across the palm of each hand
  • Short, stocky and over-weight build
  • large space between large and second toe
  • Vision challenges occur in 50% of people with DS. It is advisable to have an eye test done every other year
  • Congenital heart defects in 40-50% of people with Ds

HEALTH CHALLENGES

There may be higher risk of: respiratory problems, hearing difficulties, Alzheimer’s disease, leukemia, epilepsy and thyroid conditions.

TREATMENT/CURE

There are treatments for Down Syndrome but sadly, there is no cure. Treatments and care are available, however the steps could be utterly frustrating especially with the challenges attached, but with early intervention immediately after birth, the challenges will not be too overwhelming. Hence, appropriate medical care, emotional, psychological and educational care are required from physicians to special tutors, speech therapists, occupational therapists, physical therapists, and social workers, who can come to their aid, by preparing them so they can have equal opportunities for fulfilling lives while ensuring they are not left behind by taking active roles in the society.

World Down Syndrome Day -An Interview with DEWDROPS CARE DEVELOPMENT FOUNDATION

With the aim to LEAVE NO ONE BEHIND while ensuring that people with Down Syndrome have equal opportunities to a rewarding and a fulfilling life, NNNGO’s Olaife Ilori, on World Down Syndrome Day, spoke with Grace Bakare, Author of THE PLIGHT OF PARENT RAISING CHILDREN WITH DOWN SYNDROME and Founder, Dewdrops Care Development Foundation.

 

Grace highlighted the challenges that come with DS and how she has been able to give her daughter the best. “My daughter does not have special needs; my daughter has the same needs as anyone else. She has a need to live at home with her family. She has the need for a good education, good friends, mad fun and a supportive family”

 

THE INTERVIEW : THE UNCONDITIONAL LOVE OF A MOTHER

WHAT IS DOWN SYNDROME?

Down syndrome is a common birth defect that is caused by an extra chromosome 21 (trisomy 21). It causes mental retardation, a characteristically facial appearance, and multiple malformations. It is a genetic disorder caused when abnormal cell division results in an extra full or partial copy of chromosome 21. Down syndrome occurs in approximately 1,700 live births. Abnormalities are varied from individual to individual, common features include; flat face with short nose, prominent skin folds, and small low-set ears.

 

WHAT CAUSES DOWN SYNDROME?

While doctors are not sure why there is this birth defect with the extra chromosome 21, statistics show that women of 35 years and above have a higher chance of having a baby with Down syndrome. Normally, each cell in our body has 23 pairs of chromosomes. One chromosome in each pair comes from the mother while the other comes from the father. In Down syndrome, there are three copies, either complete or partial, of chromosome 21.

 

HAVE PARENTS DONE ANYTHING WRONG TO HAVE THEIR BABIES BORN WITH DOWN SYNDROME?

 

There is no link to anything in the environment or anything the parents did or did not do. If one has already had a child with Down syndrome, it is most likely to have another. It is not common, but it is possible to pass Down Syndrome from parent to child. Sometimes a parent has what experts call ‘’translocated’’ genes. That means some of their genes are not in their normal place.

 

SOME PEOPLE BELIEVE DOWN SYNDROME IS CONNECTED WITH SOME VOODOO OR DARK POWERS, HOW TRUE IS THIS MYTH?

 

Down syndrome has nothing to do with black magic, dark powers, or voodoo. There is no evidence to-date that it connects DS to do any shadowy, indistinct and nebulous folk tales.

 

IS IT OKAY TO ABORT THE BABY IF PRE-NATAL TESTING REVEALS THE CHILD IS DOWN WITH THE SYNDROME?

I believe it is not okay. It is an abortion which is seen as grave sin in my family. Some people believe terminating the pregnancy after early pre-natal diagnosis is right while others in the religious and anti-abortion group believe it is a sin. In the United States each year, more than 6,000 babies with Down syndrome are born, according to the National Down Syndrome Society, however, almost none are born in Iceland, that is because nearly 100% of women in Iceland who receive a positive test for Down syndrome choose to terminate the pregnancy. In fact the law permit abortions after 16 weeks if the foetus has a deformity. Iceland is not alone in having high termination rates. In Denmark, 98% of pregnancies with a Down Syndrome diagnosis are terminated. In France, it is 77% while United States reads 67%. In Nigeria Down Syndrome families are divided over aborting at pre-natal testing, but major cases of Down Syndrome births are not reported because of the traditional belief that are still associated with witchcraft.

 

WHICH PARENT DOES DOWN SYNDROME COME FROM?

It could either be from the father or the mother or from both, but it is widely believed that the gene is from the mother. It is a common knowledge that when women age, so are their chances of having a baby with a genetic abnormality. The most common form of Down syndrome is known as trisomy 21, a condition where individuals have 47 chromosomes in each cell instead of 46, Trisomy 21 is caused by an error in cell division which leaves a sperm or egg cell with an extra copy of chromosomes 21 before or at conception.

 

HOW WILL A CHILD WITH DOWN SYNDROME AFFECT THE IMMEDIATE FAMILY?

Having a child with Down syndrome will affect everyone in the immediate family, most especially young couples. When faced with life’s complexities, one is rendered speechless. At the birth of my daughter Oluwafemi Bakare, my husband was almost questioning my fidelity. ‘’Are you sure you have not been having extra marital affairs? I hope you are not cursed? These are some of the battalion questions my husband asked, while I kept pondering over my entire past misdeeds and judging myself. Whether you are an Agnostic, Atheist, Christian, Ethicist, Hindu, Jew, Moslem, Pagan, etc. you sometimes arrive at a point where you question your belief and wonder if the alternative is a better choice. It is at this point you would ask, “how do I speak with an angel?” an angel of any faith that will give you an answer. How does someone raise a child with Down syndrome and remain sane? How? How does one deal with the long therapy sessions and the bills that come with it? Is it their educational progress or skill acquisition as the case may be? This makes it even more challenging because of the birth defects. Indeed, having a child with Down Syndrome will create a lot of challenges, that is if it does not break the marriage sef.

 

 

IS DOWN SYNDROME CONTAGIOUS?

 

Down Syndrome is non-infectious or contagious. It only affects the one who has it. It is congenital which means, a person is born with it. No one gets Down Syndrome later in life. It is one of the most common genetic birth defects that happens to a child.

 

DO YOU THINK THE SOCIETY EMBRACES/ACCEPTS PEOPLE WITH DOWN SYNDROME?

 

In some parts of Nigeria, children with Down Syndrome are still hidden and locked behind closed doors for some parents are ashamed of taking them out. But recently, attitudes towards Down Syndrome have shifted considerably. Before now, children with Down syndrome were automatically institutionalized and many of them died due to some health-related challenges. But in the latter part of the 20th century, advocacy for people with Down syndrome has been significantly pronounced, children with Down syndrome have begun attending general public schools, have professional jobs and families which has made them a whole lot more independent. The life expectancy for people with Down syndrome has also increased significantly in recent times.

 

ARE THERE SPECIAL PROGRAMMES FOR CHILDREN WITH DS WHICH WOULD HELP THEM BECOME INDEPENDENT IN ALL SPHERES OF THEIR LIVES?

 

The most important influence on early development is daily interaction and activities with families. Families are encouraged to access early learning and intervention services that are available from infancy. This will support the development of some of the most important early childhood skills. Early intervention programs are helping children reach their potentials, with this in line, they can graduate to post school training or tertiary institutions.

 

AS A PARENT OF A DOWN-SYNDROME CHILD, HOW DID YOU RECEIVE THE NEWS AND HOW DO YOU COPE WITH TOUGH DAYS?

 

When I learnt that my baby had Down syndrome, I was shocked. Twelve years later, I look back and wish I could have encouraged myself much more than I did. Upon receiving my daughter’s prenatal diagnosis, I remember feeling a sense of soul-crushing hopelessness. Hopelessness of what my daughter’s life would be like. Hopelessness of what the diagnosis meant for me as a parent. Hopelessness of how different our family would be from the one I had imagined. I was changed forever with the news of having a daughter with Down syndrome. Today, looking back, I have come to replace that anxiety, sorrow and anger with strength, courage, dignity and determination. There was that stereotyped thought linked with DS; I imagined a life of zero potential, a life spent trapped in a corner unable to have a fulfilling life. An imagination which turned out exactly the opposite. Even during very trying days and I feel like giving up, Grace, my daughter with her beautiful almond-shaped eyes and captivating smile makes all the challenges surmountable.

 

WHAT WORRIES YOU ABOUT HER FUTURE?

What worries me about her future is in the area of marriage. The day she will leave me to stay on her own, who will be there for her like I do. But I know she will do just fine with or without me.

 

IS THERE TREATMENT FOR DOWN SYNDROME?

Yes, there are treatments for Down syndrome. Early intervention programmes with a team of therapists and special educators who can treat each child’s specific situation are helpful in managing Down syndrome children.

 

IS THERE A CURE FOR DOWN SYNDROME?

Down syndrome cannot be cured. However, early treatment can help many people with Down syndrome have productive lives. Children with Down syndrome can often benefit from speech therapy, occupational therapy and exercises to help improve their motor skills.

 

WHAT IS THE LIFE EXPECTANCY OF PEOPLE WITH DOWN SYNDROME?

With appropriate medical care, most children and adults with Down syndrome can lead healthy lives. The average life expectancy of individuals with Down syndrome is 60 years with many living into their 60’s and 70’s.

 

WHAT ADVISE DO YOU GIVE TO THAT FAMILY WITH A DOWN SYNDROME CHILD AND TO THAT DOWN SYNDROME CHILD WHO WISHES TO EXCEL IN LIFE?

 

A most useful advice I can give to a family with Down syndrome child is to learn as much as possible about the chromosomal disorder so they can deal with it squarely. Parents can also join an online parent forum or attend different seminars about living with a child with Down syndrome. And as the child grows, you can work with different therapists who would help improve their skills.

 

To that Down syndrome child who wishes to excel in life, I will preach FAITH, HOPE and DETERMINATION. Irrespective of any jest or bully made out of the child, he must keep the vision of where he is going vivid and alive, having it at the back of his mind that abilities abound in disabilities.

Human rights and social justice in Nigeria (March, 2019)

https://campaign-image.com/zohocampaigns/492296000000450009_zc_v9_press_release_480x204_image.png

Fundamental human rights are the “inalienable rights of people”. These are legal entitlements enjoyed by every citizen of a country without fear of government or other fellow citizens. In every country, these rights are protected and enshrined in the National constitution- chapter 4 of the 1999 constitution of Nigeria explains what are considered as the rights of every Nigerian citizen and how they can be protected.

However, shreds of evidence show that despite the entrenchment of human rights in the Nigerian constitution,continuous restrictions on some aspects of citizens’ rights continue to undermine the status of human rights in the country. Over time, the civic space has been threatened. There have been cases of human right violations, ranging from the intimidation and harassment of human right defenders, restrictions on the freedom of expression, assembly and association, among others.

The Sustainable Development Goals address the importance of protecting citizens’ rights and goal 16 delineates the need to provide access to justice for all and build effective, accountable and inclusive institutions at all levels

In line with the Istanbul principle of development effectiveness, which emphasizes the need for the “respect and promotion of human rights and social justice; CSOs are agents charged with the responsibility of bringing accountability by exposing and following up on human right violations, therefore, to assist the government in achieving goal 16 of the SDGs, CSOs must work to develop effective, accountable and transparent systems so that they can serve as a watch towards implementation.

 

Accordingly, “CSOs are effective as development actors when they develop and implement strategies, activities and practices that promote individual and collective human rights, including the right to development, with dignity, decent work, social justice and equity for all people”.

 

CSOs should be at the forefront towards ensuring the protection of these rights and the strengthening of civic space in Nigeria. Although some measures have been put in place by the government to improve the human rights situations in Nigeria, there is still room for improvement.

PRESS RELEASE – NNNGO Launches Nonprofit Self-Assessment Tool (NOPSAT)

The Nigeria Network of NGOs (NNNGO) has begun the process of improving capacity within the Nigerian  Nonprofit sector with the launch of its Nonprofit Self-Assessment Tool (NOPSAT), an e-instrument designed to help evaluate the efficiency of NGOs.

 

NNNGO sought to provide Nonprofits with a platform that allows its users to conduct a “health check” on their organisation based on information provided so that Nonprofits that log onto NOPSAT will be able to carry out an assessment on their organisations and thus, measure structure, systems, capacities, strengths and weakness in terms of financing, interaction with donors and beneficiaries as well as compliance to nonprofit laws and regulatory trends.

 

Oyebisi, B. Oluseyi, NNNGO Executive Director said; “We believe that a more efficient nonprofit with the right governance, financial, programme management monitoring and reporting framework will reinforce the attainment of agenda 2030 and make the nonprofit sector more accountable. This self-assessment tool will help nonprofits better understand how to shape their governance and operations in line with global best practices and in adherence to laws that regulate nonprofit activities in the country. We have, in this tool, set measurable indicators for efficiency and growth including goals to hold ourselves accountable as individual organisations. We know that a sector-wide attainment of these indicators will lead to stronger, innovative and sustainable third sector”.

 

Organisations can be evaluated based on honest responses to prompts intended to measure their  governance strategy and structure, human resources and administration, programme management, monitoring and reporting along with its financial management and sustainability.

 

Ultimately, the outcome of the check will provide an opportunity for Nonprofits to strengthen their organisation, put sustainable systems in place and seek capacity development where lacking.

 

To assess the status of your organisation, do a self-assessment today by clicking  http://www.nonprofitactioncentre.org/assessment/

 

For further information, please contact,

Chidinma Okpara : chidinma.okpara@nnngo.org

Adeola Odunsi:      adeola.odunsi@nnngo.org

+234906 946 0107

The Nigeria Network of NGOs (NNNGO) is the first generic membership body for civil society organisations in Nigeria that facilitates effective advocacy on issues of poverty and other developmental issues. 

Do you have questions? Call or visit us.

+2349069460107

Plot 3 Sobanjo avenue, Idi-ishin Jericho Ibadan, Oyo, Nigeria.

nnngo@nnngo.org 

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